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ISRAEL AT WAR - DAY 372

Tay-Sachs

Myra Sack and Matt Goldstein holding Havi Lev Goldstein. (Courtesy)
August 2, 2024, 4:22 pm
Their daughter’s death from Tay-Sachs at age 2 transformed this family’s view of grief
In her new memoir, ‘Fifty-Seven Fridays,’ Myra Sack chronicles how she and her husband continue to navigate the loss of their child, carrying her with them as they move forward
By Cathryn J. Prince
Illustrative: Genetic testing. (AP Photo/Douglas C. Pizac)
October 28, 2019, 1:30 pm
Researchers unveil possible breakthrough treatment for Tay-Sachs
Infants with degenerative genetic disease who underwent experimental gene therapy treatment show preliminary evidence of clinical stabilization
By ToI Staff
Carla Steckman
November 30, 2017, 2:47 pm
Carla Steckman
I told Facebook my daughter had Tay-Sachs
Here’s what happened when I stopped worrying about entertaining the masses
Widespread testing is credited with helping reduce the incidence of Tay-Sachs among Jews by more than 90 percent since screenings began in the early 1970s. (Courtesy of National Tay-Sachs and Allied Diseases Association/via JTA)
August 23, 2017, 3:33 am
How Jewish activism has virtually wiped out Tay-Sachs
Thanks to technology and an aggressive screening campaign, the genetic disease is all but gone today — and carrier couples can have healthy children
By Ira Stoll
Actress Angelina Jolie authored an op-ed for Tuesday’s May 14, 2013, New York Times, where she writes that in April she finished three months of surgical procedures to remove both breasts as a preventive measure. (photo credit: AP/Carlo Allegri, File)
May 17, 2013, 2:29 pm
Angelina Jolie may not have gone far enough to prevent cancer
Dr. Steven Narod, the foremost expert on BRCA gene mutations and their links to cancer, says the actress’s dramatic double mastectomy is only a good start
By Amanda Borschel-Dan
Illustrative: Genetic testing. (Memorial University of Newfoundland via JTA)
November 25, 2012, 6:57 am
Genetic testing raises wrenching questions for Jewish parents
Rabbis and bioethics scholars struggle over advances that could boost health, fearing they could also lead to more abortions
By Joel N. Shurkin
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